Curtin Memorial Library
 
 

Mount Saint Mary College Authors

Division of Social Sciences

ARTICLES

Title:A measure of subjective burden for dementia care: the Caregiving Difficulty Scale-Intellectual Disability
Authors:Lawrence T. Force
Periodical:Journal of Intellectual Disability Research, v49, n5, 2005, p365-371
Abstract:It has been suggested in the literature on family caregiving for persons with Alzheimer's dementia (AD) that levels of objective and subjective burden among carers often predict institutionalization of the persons with AD. There is a paucity of measures to assess whether perceived burden among formal caregivers may also predict movement to more restrictive settings for persons with intellectual disabilities (ID) and AD. This study focused upon the development of a measure of subjective burden, The Caregiving Difficulty Scale– Intellectual Disability (CDS-ID) as a first step in addressing this measurement deficit.An existing caregiver subjective burden scale, the Caregiving Hassles Scale (CHS) was adapted for use with 203 staff caregivers of persons with ID and AD. Preliminary testing of existing CHS items and proposed new items was carried out in two countries, Ireland and the USA. Confirmatory factor analysis with the existing items and exploratory factor analysis with existing and proposed new items for the scale was used to establish the content and test the psychometric properties of a revised scale, the CDS-IDOn the existing CHS items, staff carers appeared to experience greater subjective burden than has been reported for family caregivers. However, the psychometric properties of the CHS found with this population were poor. Factor analysis produced a revised scale, the CDS-ID with three subscales with Cronbach alphas ranging from 0.75 to 0.93 and 38 items overall.This new scale when used with objective burden and other scales offers an opportunity to more systematically measure the difficulties staff experience when caring for persons with ID who present with symptoms of AD.

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Title:The middle years and beyond : transitions and families of adults with Down Syndrome
Authors:Lawrence T. Force, Nancy S. Jokinen, Matthew P. Janicki, Mary Hogan,
Periodical:Journal on Developmental Disabilities, v18, n2, 2012, p59-69
Abstract:Normally expected transitions connect the various periods of life. Often these transitions are prompted by life events that require adaptation to a changed circumstance and may challenge both individual and family quality of life. Such transitions may be planful (proactive) or demand (reactive). Little, however, has been written about the nature of such transitions and how they specifically affect older-aged families of adults with Down syndrome.

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Title:Guidelines for structuring community care and supports for people with intellectual disabilities affected by dementia
Authors:Lawrence T. Force, Nancy S. Jokinen, Matthew P. Janicki, Seth M. Keller, Philip McCallion
Periodical:Journal of Policy and Practice in Intellectual Disabilities, v10, n1, 2013, p1-24
Abstract:To assist families and organizations in their planning for extended care that accompanies the diagnosis of dementia, the National Task Group on Intellectual Disabilities and Dementia Practices (NTG) in the United States adopted a set of practice guidelines covering the period from when suspicions are aroused to when care ends with eventual death. These guidelines are drawn from the research literature as well as clinical experiences and demonstrated best practices.
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Title:Guidelines for structuring community care and supports for people with intellectual disabilities affected by dementia
Authors:Lawrence T. Force, Nancy S. Jokinen, Matthew P. Janicki, Seth M. Keller, Philip McCallion
Publisher: International Task Group on Intellectual Disabilities and Dementia Practices, 2013

BOOKS

Title:Spouses and children in accessing adult day care : differences in attitudes and behaviors among daughters, husbands and wives
Authors:Lawrence T. Force
Publisher:UMI, 1993
Edition:1st

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Chapter Title: Adult day services
Title:Dementia, aging, and intellectual disabilities: a handbook
Authors:Lawrence T. Force
Editor:Matthew P. Janicki, Arthur J. Dalton
Publisher:Taylor & Francis , 1999
Edition:1st

Chapter Title:Grief therapy for cognitively impaired individuals
Title:Living with grief: Alzheimer's Disease
Authors:Lawrence T. Force
Editor:Kenneth J. Doka
Publisher:Hospice Foundation of America, 2004
Edition:1st
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Title:Gerontology : an interactive text
Authors:Lawrence T. Force...[et al.]
Publisher:National Social Sciences Press, c2010
Edition:1st


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